In Poland there are more than 5 000 CSOs dealing with healthcare issues, of which approximately 1 000 focus on helping patients. They are usually formed by patients and persons close to them, who want to share the experience they gained when suffering from illness, and assist other sufferers. Research conducted by the Project Promoter in 2017 and 2020 shows that a very high number, 96%, of representatives of patient support organisations feel a need to develop their knowledge or learn new skills through training or by having the option of attending consultations in the field in question.
The project addresses needs voiced by organisations dealing with healthcare, regarding training, consultations, and support. The main aim of the project is to give patient organisations access to legal advice on patients’ rights, social consultations, and healthcare, and enable leaders in this group to operate professionally (self-advocates) for them to become effective at their advocacy activities for the sake of patients and patients’ families.
The Project Promoter will hold a series of face-to-face workshops (recorded and then released to the public) on topics submitted beforehand by leaders, such as psychology, the GDPR, communication and PR, the healthcare system, working with stakeholders, and patients’ rights. It will also be opening a patients’ rights advice centre – a helpdesk for patient organisations. Expert analyses and bulletins on current events important to patient organisations will be posted on the Project Promoter’s website for the entire duration of the project
The project will help to improve the skills of patient organisation leaders, strengthen their position among stakeholders, and enable the mission to help patients to be pursued more effectively. The project has helped approximately 400 patient organisation members, and this will include approximately 100 taking part in awareness-raising activities.