Tourette Syndrome (TS) is a neurodevelopmental disorder in which there are numerous motor and vocal tics. The specific nature of the disorder, and the poor knowledge of TS lead to exclusion and stigmatization of sufferers. The lack of systemic solutions mean that despite being perfectly capable intellectually, sufferers first as children have difficulties at school, and then as adults they face difficulties in careers and social relationships.
The project is intended to help to combat exclusion and mitigate the effects of discrimination against people who have TS and those close to them through improving their knowledge, enhancing skills, activating them to undertake grassroots initiatives and self-advocacy, counselling, and actions that help increase public awareness.
We will conduct a series of training sessions on TS, for various groups: sufferers, their parents, people doing medical, psychological, educational personnel work, and volunteers who might encounter sufferers in their work. We will organize a therapeutic and training course for children and young people with TS, and nationwide moderated integration meetings, Weekends with Mr Tourette (Weekend z Panem Tourettem). We will also conduct a nationwide campaign, Tourette in action (Tourette w działaniu), conducted mainly by self-advocates. This will consist of educational and activating activities in the community and psychological support.
The measures will be conducted on a nationwide scale in Poland. 74 people (sufferers and persons close to them) will be provided with support and 100 people who may encounter TS in their work will be given training. 10 volunteers will be included in the measures.
The partner – the informal, international Group Tic?Tak! will provide support with the expert knowledge by contributing unique knowledge concerning measures taken to help vulnerable people with TS, especially young people.